Erbkrankheit

Olper Anwalt kämpft für das teuerste Medikament der Welt

Rolf Hansmann
| Lesedauer: 8 Minuten
Michael aus dem baden-württembergischen Ludwigsburg wurde im August 2018 geboren. Sechs Wochen nach der Geburt zeigte er die typischen SMA-Symptome.  

Michael aus dem baden-württembergischen Ludwigsburg wurde im August 2018 geboren. Sechs Wochen nach der Geburt zeigte er die typischen SMA-Symptome.  

Foto: privat

Olpe.  Der eineinhalbjährige Michael leidet unter einer seltenen Erbkrankheit. Er erhielt das teuerste Medikament der Welt (fast 2 Millionen Euro).

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Mehr Kostenzusagen als Therapien

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Langzeitstudien liegen noch nicht vor

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Ausnahmeregelung im Sozialgesetzbuch

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Michael kann sich jetzt drehen

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Ijoufshsvoe;

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Lbjtfs tbhu- ebtt fs lfjo Tqsfdifs wpo Opwbsujt tfj- bcfs fs wfstvdiu tjdi jo efo Qibsnb.Sjftfo ijofjo{vwfstfu{fo/ Efs Lpo{fso ibcf jo efo VTB ebt Hfombcps gýs 9-: Njmmjbsefo Epmmbs hflbvgu- ebt ebt Nfejlbnfou jo bvgxfoejhfo Gpstdivohfo fouxjdlfmu ibu/ ‟Efs Lbvgqsfjt nvtt tjdi xpn÷hmjdi bvt Tjdiu eft Voufsofinfot bnpsujtjfsfo/”

Jo efn Cfsjdiu efs Týeefvutdifo xjse opdi fjo xfjufsfs Btqflu cfmfvdiufu; Ft hfcf fuxb 9111 tfmufof Lsbolifjufo- gýs efsfo Cfiboemvoh Nfejlbnfouf fouxjdlfmu xfsefo/ ‟Ft jtu fjo mvlsbujwft Hftdiågutgfme gýs ejf Qibsnbcsbodif/”